Tags: communication, experts, female sexual dysfunction, FSD, health, media, medicine, news, pain, physical therapy, sexual health, television, vaginas, vulvar vestibulitis, vulvodynia
Set your TIVOs & old timey VHS decks to record this:
According to His & Her Health forum,
Be sure to tune into 20/20 next Friday [August 7, 2009 -K] at 10pm ET, when Dr. Timothy Johnson, ABC News’ Chief Medical Editor, will discuss the diagnosis and treatment of sexual pain disorders and vulvodynia with Andrew Goldstein, MD, and Amy Stein, MPT. Dr. Goldstein directs the Center for Vulvovaginal Disorders in Washington, DC, and New York City. Ms. Stein, a New York-based physical therapist, specializes in the treatment of pelvic and urogynecological pain disorders. The segment will also feature the stories of two women with sexual pain, as well as an interview with Christin Veasley, NVA’s associate executive director, and her husband Melvin.
You’ll definitely want to check your local TV listings to find out what time & channel it will be airing for you. The description also mentions, “Sexual pain disorders,” so it sounds like we may hear a few words on some other related conditions.
I hope they get it right this time. I’m a little apprehensive after what happened the last few times vulvodynia was on TV.
Probably the first time vulvodynia was mentioned on TV was during Sex & the City, which generated some attention & discussion, but the topic was handled flippantly. There was that episode of Private Practice (Season 1, “In which Addison finds the magic,”) which was a little more complicated & in depth, but still not 100% satisfactory. I don’t believe that Oprah ever aired that episode about vulvodynia the producers were recruiting for about a year or two ago. I don’t think that show was aired in Fall 2008. If it was, I must have missed the post-show discussion that was surely generated online.
At this point, there is little influence any of us can have on what happens during the show. I’m hoping that since the Goldstein, Stein & Veasley are familiar with vulvodynia, the discussion will be accurate and professional.What’s been said has been said, so it’s up to the editors now.
Here’s hoping it goes well.
Tags: dilators, female sexual dysfunction, FSD, health, medicine, pain, physical therapy, sexual health, TMI, vaginismus, vaginitis, vulvodynia
Wow if I ever thought I’d be able to take a vacation from dilating for a few weeks, I was completely wrong. I’m really not going to be able to let up with this for the rest of my life am I?
I went to PT again this week. Since it has been a few days since I finished both medications for the vaginal infections, and I was feeling better, I felt ready to start up with the internal work again.
That was one of the more difficult internal work days I’ve had in a long time. Before the infections, I had been able to handle the largest dilator comfortably, and quite a bit of pressure on the tissues. It’s more uncomfortable now. I’m not reset back to zero, but I definitely fell back. No tearing or bleeding, and things were within my tolerable range, but just barely. I had to start off with one of the smaller sizes and I’m definitely not ready for the big one yet. I’m being paranoid about germs even though I washed my gear, so I’m insisting on covering the dilators with a condom for awhile. I probably don’t need to. They’re not made of porous materials and I don’t share them with anyone.
Once again I left wondering what, exactly, the biggest component of the discomfort was. Was that the vaginismus acting up? Definitely; the muscles were tensing & haven’t been worked much for a few weeks. Was some discomfort the residual vestibulitis? I don’t know but I hope not. That area of redness I noticed during the infection is better now but still not the same shade of pink as the rest of me. Could there still be some infection left? Maybe; although the sensation of intense heat is gone, and I’m not registering anything else out of the far-reaching realm of normal for me, my infections don’t like predictable textbook cases. HOW WOULD I KNOW??? If it looks like I’m shouting, it’s because I am. Not knowing is frustrating. I’m getting frustrated when I read comments online that talk about how women need to learn what normal is & what infection symptoms to look for. Mine’s not working like that.
Or maybe some discomfort is just due to me approaching my menses. I’m a bit low on some hormones.
This current discomfort is actually something I’m less pessimistic about. Right now I’m not as worried as I thought I would be. Since I’ve felt worse before, and the residual pain post-surgery responded well to PT and at-home pelvic floor & dilator exercises, I feel confident that I may be able to get the tissue supple again over time. The PT wants me to pick up with the dilators & at-home exercises again ASAP.
Of course only time will tell if my optimism is warranted.
I’m still disappointed though – I guess I won’t be able to take a break for more than a day or two for awhile. I was going so well too, I could skip 3 or 4 days without losing much ground. I was maintaining. But two weeks is just too much. I’m interpreting this difficulty with inserting things as a sign & a reminder that I am going to deal with this pelvic floor dysfunction, residual vulvodynia, vaginismus, for the rest of my life. It’s better than it was, no doubt. But some residual may be lurking under the surface long term.
*Sigh* what did I expect? I know vulvodynia is a chronic condition. Vaginismus is going to take a long time for me to address, too. I spent at least several years at least living with chronic vulvar pain. There’s a possibility that there may have been something going on longer, even before I became sexually active. It’s not going to go away overnight.
This could get awkward down the road. How am I going to do this if I have kids? I’ll need to maintain my exercises through pregnancy, certainly. But then what? I can see it now, the baby starts crying and mommy has to struggle to get up off the floor, clean herself off and pick up the baby. And it’s just going to be a mess. Or maybe mommy can shout at daddy and tell him to go pick up the baby, mommy’s in the middle of something. Or something is in the middle of mommy, as the case may be.
Then what if I have a major pain flare while I’m working and being a mom… I don’t think I want to think about that right now.
Welp. Looks like I’ve still got some work to do.
*Metaphorically speaking only. Yeah right like I’m ever going to ride on a normal saddle again. Guess I won’t be going horseback riding or biking in the mountains any time soon. I guess the sybian is out of the question for me too. Oh well, that’s all out of my price range anyway.