I will be your lab rat for the evening

09/30/2009 at 7:05 pm | Posted in Uncategorized | Leave a comment
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My specialist’s office called me the other day. Or rather I should say a researcher from the office, to see if I was willing to participate in a vulvodynia study.

I don’t think I can say what questions were asked or what my responses were, since I don’t want to break confidentiality. But, I answered the questions honestly to the best of my ability. It was pretty simple. I think I see where we’re going with this study. I hope my answers, aggregated with other ones to produce statistics, help someone.

This study is only available to women who have had a vestibulectomy, so, chances are you can’t participate in this one.

Don’t feel left out though. The online support groups are helpful for this kind of thing – finding current research & networking – but the trade-off is that it exposes your identity to your friends…
But there’s some studies posted in there.

On one such group, the maintainer posted a link to this site: Dr. Laura Clark – and that site has links to 3 surveys. One is for women with vulvodynia, one is for women without vulvodynia, and one is for partners of women with vulvodynia. I participated in the first of those studies, and my boyfriend completed the last one. Anybody without vulvodynia reading this can think about doing the second one. I’m not sure where Dr. Clark is going with that second survey.

And I’m not sure yet which journal (if any) these results will be published in.

So yes. I am a statistic.

Fine.

It was nice to talk freely about having had vulvovaginal surgery without being judged & condemned.

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